Monday, July 31, 2017

The Critical Mom's Cauliflower Casserole

This is adapted from a German children's cookbook featuring Bugs Bunny. But the Bugs Bunny version has no garlic and no cauliflower. I prefer my version:

Ingredients:
One large head of cauliflower
About 250 grams noodles (rigatoni or spiral noodles)
About 5oo ml cauliflower-water, i.e. the water in which you've boiled the cauliflower
About 200 ml cream (more is fine)
About half a tablespoon of nutmeg
A pinch or two of cayenne pepper
A block of  Parmesan cheese (enough for a family of five)
Butter--around 100 grams, total. More is okay.
Many cloves of garlic. Sixty, if you have the energy. But never mind. I only use one or two myself.
Five tablespoons of flour

PRE-HEAT oven to 200º Celsius (around 425º F)

(1) Boil noodles, drain and set aside in a colander. Lean toward al dente--they'll be baking too, and if you cook them for the "twenty minutes" the original recipe recommends, they'll disintegrate. 

(2) Grease a largish pan with butter. Around fifty grams of butter.

(3) Cut apart a head of cauliflower. Boil, including the little crumbly bits, for about ten minutes or until you can easily poke a fork in.

(4) Put the noodles in the greased pan. With a slotted spoon or small sieve, airlift cauliflower from pot to pan, leaving water intact, with all the little bits of cauliflower that were so small they stayed in the pot when you lifted out the rest.

(5) Mix noodles and cauliflower around in pan.

(6) On a small cutting board, slice up your garlic. Thin slices, but it doesn't have to be diced. Put these in a small pot with at least fifty (but if you use more I'd jump for joy) grams of butter, and put on low heat. Gradually add, stirring constantly, the five tablespoons of flour, and add the nutmeg and cayenne pepper. NOW add 500 ml of the cauliflower water, and you can include all the little piece of cauliflower that didn't yet make it into the dish. Stir. Add the cream. Keep stirring at low heat until the mixture thickens. Pour over the noodles and cauliflower.

Grate the Parmesan and sprinkle over the noodle-cauliflower casserole. Bake for thirty-to-forty minutes. Enjoy with red wine. Or white.


Friday, July 28, 2017

"Pop!" Goes the Palbociclib

I was thinking of getting off the clinical trial, gentle reader, because my white cell count spent a week hovering at the levels of a patient in the final stage of AIDS. During this hand-sanitizered time, when I went through gallons of the clear antiseptic fluid in the little plastic bottles, bottles that always got lost at the bottom of my purse, and when I put on rubber gloves when I had to pick up dishes my feverish child had eaten off of, I worried. Is taking this drug just good for the clinical trial or is it also good for me? Nobody knows, of course. That's why the clinical trial continues. If your white count rises, you get to go on a slightly lower dose of the medication. I went to the hospital twice to have blood drawn--sometimes they can't find a vein. 
"What did you drink this morning?" asked the nurse. 
"Coffee! With lots of hot milk," I said. She shook her head. I was supposed to drink water, lots of water, eight glasses of water.
"But then I'd have to pee all the time," I said, and she rolled her eyes. 
The American hospitals seem to think you should always swallow your pills with "a full glass of water."
After my nightly glasses of red wine? And when I'm about to go to bed, hoping not to wake before four a.m. when I always have to pee? I don't think so. 
The American hospitals say, "No Seville oranges." I don't know if the navel oranges I've been gobbling hail from Seville. They might actually come from Florida. But I stopped eating them until my white count climbed again. I've had to renounce grapefruit for the duration of the study. Also grapefruit juice. It's a good thing they didn't ask me to give up chocolate, red wine, or curry.  They did, however, make me stop taking the pills while my white count remained in the toilet. When they called in with the first blood count, I could tell from the nurse's tone of voice that the news was going to be bad. Hesitant, shaky, doubtful: "Well, we hope that your count will go up," she said, but her unsaid warning seemed to be that if it did not, I'd be residing for the rest of my life in one of those huge plastic bubbles, like the boy in Paul Simon's eighties ballad:
I came in for the second blood test that week, and the nurse beamed and said, "I understand you are on a drug holiday?"
Now, she used the term perfectly correctly. It really does mean a required break, or a legitimate break, from a medication. But (1) I've only heard the term used by women who go off their antidepressants for a week so they can have orgasms with their boyfriends and (2) I can't help picturing a "drug holiday" as mainlining heroin or something equally evil.
My white blood cell count climbed again, so my "drug holiday" ended. Of course I don't have anything like a normal count. Just better than bad.  I continue to use enough hand sanitizer to send the stocks of various companies soaring. (Check this out: https://www.nytimes.com/2016/04/21/health/washing-hands.html) And I pop a smaller pill, one with only 100 mg, down from 125 mg. The twenty percent chance of cancer returning is still supposed to be diminished, even with the smaller dosage.  But oh, ye Pfizer gods, what exposures to which ailments occur when you're inhibiting cancer cells while inadvertently lowering white counts?
I've had four different answers to this question so far, none of them satisfactory. Weigh in, pharma, big and small, weigh in.

Tuesday, July 25, 2017

Breast Cancer Girls: to Out Oneself at Work or Not ? Pros and Cons

If you don't tell the folks at work, you have the fun of being the local Rorschach test. 
I just met up with a colleague who hadn't seen me since my wig--we had to give an exam together. He's a scholarly Irishman, entirely buried in his work, so much so that I was counting on him not noticing anything different about me. But he glanced up from his coffee with that startled look--followed by a look of horror--the one typically preceding a remark from one of the secretaries about what a nice new hairdo I have. With frozen politeness that belies the shock they can never quite hide, they say, "Short for summer, right?" and I smile back and thank them. 
This guy said, nervously, "Well, now, you've really remade yourself completely!" His eyes flicked me over and the scholar in him took over--having processed the data, he felt driven to assess: "Was it a mid-life crisis, now?"
I smiled. "A mid-life crisis is as good a name as any."
He smiled back as if he now knew just what the situation was: "Well, now, don't worry--it'll be over soon!"
See? Rorschach test. He looked at the ink blots and thought "menopause." I'm kind of flattered. Yeah, as in, "Gee! I look young enough to be just starting menopause?" 
If you go ahead and tell the folks at work that you had cancer, you never get to hear stuff like this, and I must say, I enjoyed hearing it. 
I didn't tell because I didn't want people rushing up and asking how I was, with a look of tragic fear in their eyes that screamed, "Are you going to get so sick I have to teach your courses for you or give your exams, or worse yet, clean up some mess created by your cancer-riddled brain?" Or maybe they'd do what I would have done, in fact, did do, when another colleague came down with breast cancer. I wondered what she'd done to deserve this. Not that she'd done anything. But she must have had an unhappy this or an angry that or taken too much whatever. I would much rather have thought she'd done some preventable thing than feel the full force of how unpredictable life is. Only I am predictable: must have been the clomid I took to increase fertility. Or the red wine. Or drinking out of plastic bottles. Or using lipstick and hair dye. Or . .  .
So, for me: tell your family. They will help you through an illness. But the folks at work are unpredictable. If they're like me before I had cancer, I wouldn't tell them. 

Friday, July 21, 2017

Ask Three Doctors, Get Three Answers: The Palbociclib Blues

I feel fine, but my white cell count is slightly above that of a corpse. I'm in the range where, according to my physician friend E., I should retire to a bubble: "Don't travel! Don't go outside! Don't be in crowds! Avoid anyone with a cold!"
But I want to live
Today, I went to the main railway station, took a train, while surrounded by people, all of us squishing past each other and angling for seats, to a neighboring city, where I took a ballet class. Steamy, sweaty people gripped barres and little droplets of perspiration flew around the room. After class, I got back on the train, came home. Every step of the way--after I pushed the button to open the tram door, after I gripped the back of a seat so as not to fall down, after I opened my locker--I slathered on hand sanitizer, to the point where my skin is really, really dry, so then I get out the Eucerin. Hand santizer is my holy water--and I'm not even religious.

I didn't go for my friend E.'s answer--even though she's a really hotshot doctor--so I asked another doctor, who said: "Nooooo, you don't have to stay home. Just take the precautions you are taking, and don't kiss anybody who has a cold."
My husband doesn't have a cold. We do a lot of kissing. My daughter does have a cold, so I haven't hugged her for a week, but I do bring her cups of tea and jump back when she coughs. So far, I'm not sick.
Doctor number three reminded me that I'm better off sticking with the Palbociclib if I can tolerate the side effects, because otherwise the cancer might come back. "It does with a lot of women," he reminded me. 
I may go for doctor number four pretty soon. Anyone with a cheerful word and a new idea would be fine by me.

Thursday, July 20, 2017

Trans Plans? Thinking about Transgender Lives

Heading home today via the station named after my German region of residence, I was startled to see, neatly affixed to the wall above the escalator, a new enamel plaque indicating a change of station name: elegant white letters on a deep blue background proclaimed: CHELSEA-MANNING-PLATZ, or Chelsea-Manning-Square. Really? Are Germans that cool, or was the sign just the work of a politically-inclined prankster?

City of openmindedness or lone wolf? Wolverine?


Presumably the latter--my son couldn't believe how gullible I was ("They don't use that font on signs here, Mom!") and since I find no information about new names for stations in our local news, but I admire the taste and resourcefulness of the person who put the sign there.  In my defense, I've seen that font elsewhere. Quite nearby.
Looking quite professional and really hard to reach, the sign gleams with a certain cocky pride at the skinheads who can't pull it down. I bet someone made an effort to get that thing on the wall in such a way that it'd be hell to remove. I imagine that someone dangling, Mission-Impossible style, from the ceiling to place the sign. 
My students have been reading Jennifer Finney Boylan's entertaining exploration of her transgender experience, so the new name struck me as the universe's stamp of approval for acceptance and tolerance. A long time ago in a galaxy far away, there was a country, the United States of America, that had a real president. Not the thug with economic tentacles running so deep that even if they all got sliced, he'd pop out new ones faster than the many-headed hydra. Not the guy who could shoot someone on Fifth Avenue and still get elected.
But here, in a small city in Deutschland, we've got a Chelsea-Manning-Platz. When will be get an Edward-Snowden-Square? Listen, my clever ideologue, you who puts up signs: this time pick a place where everyone will see your sign. How about Hauptbahnhof?

Post Hoc, 15 August: I came down the escalator and glanced over at the wall, and alas! No more Chelsea-Manning-Platz. Damn. Put back that sign, please!

Thursday, July 13, 2017

Training the Narcissistic Mom: Five Tips

Well, you can't, really. But you can manage her, sometimes, if you decide to remain in touch at all. 

(1) Two massive handfuls of praise can result in a droplet or two of money. I dolloped out the "you-are-wonderfuls" as much as I could because my son needs a few expenses covered at university and my mother loves playing Lady Bountiful. We thanked her. Profusely. And we'll do so again.

(2) You have the right to remain silent. Tell her nothing. Rule of thumb: if you don't really care about something, you're safe discussing it at any length with her. What's dear to your heart should stay right there--nowhere near her.

(3) But she's asking! She wants to know? What do I do? You make something up, or you omit whatever would make you sad or nervous to talk about with her, and you send her something she wants. A photo of your kids to put on her wall and brag about. A box of stuff she likes to eat from Amazon Prime.

(4) Keep a journal. When she sends a letter or she keeps you on the phone and you read the letter or you listen to her and your head starts to spin, just write down everything that trots through your mind. And if you're at all like me, plenty of thoughts will stampede through your head after a five-minute conversation with Mom. I write on trains. I find recollecting what I wish I could say to her soothing. Writing these things down also helps prevent you from confiding in her. 

(5) Find out as much as you can about her. This helps more than you'd think. After digging through family letters and photos, listening to her, and delving into my own recollections, I really do have a good sense of how she became so awful. I can sympathize. I can see how she never had a chance, even as I ask myself, "My God--couldn't she have developed a tiny bit more sense than a newborn?"

Sunday, July 9, 2017

How To Write a Condolence Card When You Dislike the Bereaved: Six Tips

I was rather fond of a relative who just died. I don't like her kids with whom I've had almost no contact since 1995.

What to write on the condolence card? Hundreds of websites out there offer lines that sound really good. 

None advise on what to say when you'd prefer to avoid the bereaved. So I'm establishing  guidelines:

(1) Relax. You need not worry about buying the perfect card! My husband was on his way to the grocery story and said he'd pick one up. "Religious or non-religious?" he asked. "Non," I said, and I now have a crucifix-free card.

(2) Keep it simple. I once had a dreadful colleague whose brother committed suicide. It occurred to me that I might be fired for not sending a card, so I found one that had upbeat, comforting lines, wrote, "I am very sorry for your loss," signed the thing and sent it. 

(3) Resist the urge to explain. A no-brainer.

(4)  Although they're probably not looking for a card from you any more than you're looking to send one, they'll resent not getting one. Either way, they're not going to change, so just send the thing.

(5) Deaths are a time for reflection. Why was it you found your aunt more forgivable than her kids? Because they knew better--or I believed they did. That was my fault.

(6) Doesn't the person deserve a card even though you'd rather forget him or her? I suppose. Will a card from me be appropriate? The key issue remains whether you'll have less grief, so to speak, if you send the card. You're doing the socially correct thing. What's in your heart stays with you, if you wish to console.

True confession: I sent the thing, and now can throw away their address. I was surprised how exhausting it was to write four or five sentences. Almost more exhausting than producing that 68,000-word memoir I'm trying to market. Because I was restraining myself from dumping those words on my relatives. 

Who are, yes, in my book.



Thursday, July 6, 2017

Trump Marches Into Poland

He told conservative Poles exactly what they wanted to hear. Most of what he said could be construed as fairly true, or at least moderately true. According to Wikipedia, from which he took a chunk of his talk. A few stale facts with a dollop of very creamy flattery. Besides, "a man who can't talk morality twice a week to a large, popular, immoral audience is quite over as a serious politician," Oscar Wilde remarked, and the Poles, with their pro-Catholic, anti-woman, anti-immigrant, anti-free-speech agenda, lapped it up. The Donald, pleased with himself, as always, sailed offstage, leaving Germany and France and the huge bill he's sending them for NATO in his wake.
On the train this morning, a British guy told a colleague he was really glad Trump had won. If only Marie Le Pen had won, too, the British guy said. The other guy--apparently an underling--said it was so great to be with someone who "talked normal!" Yeah, the Brit agreed, "Not many people do these days."
Except in Poland. There Trump stood, alternating the Wikipedia page on Poland with goo about patriots dying for their country--for freedom. Then he threw in a few God-Bless-Yous and fled.
 A  Polish joke. But this clown keeps on winning. Why?  

Monday, July 3, 2017

The Boundaryless Family and the Virtues of Estrangement

I called my ancient mother, who is determined to get on a train all alone, without her walker and without her cane to sit by the bedside of her sister, whom she has never liked, and who is now dying. I did try to suggest Mom might like a traveling companion, but of course this is none of my business. When are such things my business? She can barely remember the name of the relative with whom she's staying, and her assisted living residence nurse cringes every time she wanders off without the cane or the walker. . .  which she's always doing. Meanwhile, Mom insisted she was fine, that "it's just a train ride," and that by the way, how had I known my aunt was dying?
Her daughter, Cousin X had told me, said I.
"That's nice. By the way, did Cousin X mention her son is having surgery to become a woman?"
"No, she hadn't," I said. "So now we have a transgender relative," I added, since Mom seemed to expect me to say something. I took a cheerful tone, as is always amenable to her, perhaps especially when her sister is dying. 
She must have felt utterly disappointed that she had not gotten to deliver the shocking news that her very own sister and my aunt was lying in a bed in a hospital and was never, ever, going to come out. She had to top that news:
"Oh, and he's now going by the name of Y," she said, offering his new, feminine name, which does not begin with Y, and yes, curiosity drove me to look the kid up on Facebook.
Why is Mom rushing to the bedside of an unconscious sister after a lifetime of undercutting her? I can imagine a cartoon balloon spelling out Mom's thoughts as she holds the dying woman's hand: "I won, because I'm older, but lived longer."
It would never occur to Mom that Cousin X might like to be the one to tell me about her son. Or not tell me about her son. The son, or daughter-to-be, might have his own wishes about what, when, and where to tell relatives about his transition. 
Cousin X had, however, a few months ago, sent me her sister's very thorough genetic tests revealing a particular illness. Had Cousin X asked her sister if it were okay to send me test results? I didn't ask. But I don't tell these folks anything at all about myself. Back in the days when Mom invited my ex-boyfriend out to let him know she would have married him, I thought I still had to let her know some things about my life, because She Is The Mother. 
But I don't. I send her just enough information--a cute photo here, a funny story there--to keep her from asking too many questions. 
Meanwhile, the relatives tell me to give Mom "plenty of TLC." Oh, I do. I call her and I ask how things are going and how she's feeling.
"Fine!" she says, adding, with unmistakable relish, that her sister "is breathing through her mouth now!"
P.S. She skipped the funeral. Her sister died, the excitement was over, my mother felt she'd gotten what she came for, and she went home on the train. All by herself.